Fibromyalgia and the start of my old story…

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I try to be lighthearted and share only the positive in this blog. But today I’m going to share where I am and hope that it can be of help to someone else!

I’m not going in to all the details… Since as an additional malady I also have non-diabetic peripheral neuropathy. What this means is that in my legs and now in my fingers I suffer from cramps in my legs that began in my feet and now goes up over my knees, and numbing of my fingers which has just started in recent months.

I keep buying exercise dvd’s hoping that I will find one that allows for my body issues. I know I need to ‘move’, but my physical ability isn’t there.

Normally if I dust and sweep, it takes me 1-2 days before I can vacuum or do laundry. I am finding that I having difficulty sitting and then standing… Can’t seem to get comfortable enough to relax.

I try to focus on reading and of course blogging. But one of the wonderful trick-or-treators of Fibromyagia is what they label as brain-fog or fibro-dog… Making it difficult to concentrate. Sometimes I find myself reading the same pages over and over again… But, all I can do is keep trying to function.

On a scale of 1-10 most days I’m at about an 8 with medications. Without them I’m off the scale.

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Here is a list of the medications I’m currently taking… Hold on to your hat!

Paxil
Wellbutrin
Soma
Percocet
Elavil
Neurontin
Fiorinal (for migraines)
Prevacid (for acid reflux disease)

I have been going through this for more than 10 years when I learned I wasn’t a hypochondriac who was going crazy, but rather and finally diagnosed with the fibromyalgia. When the doctor first diagnosed me with it, I remember crying like a baby. The relief was so intense!

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I’m going to share some links that provides more information on this oft-times misdiagnosed disease. Again, my hope is to provide you with more information…

http://en.m.wikipedia.org/wiki/Fibromyalgia

http://www.nlm.nih.gov/medlineplus/fibromyalgia.html

http://www.mayoclinic.com/health/fibromyalgia/DS00079

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20 responses »

  1. Wonderful blog you have here but I was wanting to know if
    you knew of any user discussion forums that cover the same topics discussed in this article?
    I’d really like to be a part of online community where I can get opinions from other experienced individuals
    that share the same interest. If you have any suggestions, please let me know.
    Thanks a lot!

    • Of course – it’s how we learn and grow as people…from the time we pick up a book for the first time…we are taking in other people’s ideas and forming an opinion of trust or mistrust over the content we take in.

  2. It is the best time to make some plans for the longer term and it’s time to be happy.
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  3. It’s nice to try to stay positive but you do feel better from sharing the truth sometimes, especially if its to try to help someone else, thanks for this post.

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